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OSF launches Thalassaemia awareness campaign

 

Religious scholars, clerics, journalists, intellectual and prominent figures from other walks of life will be sensitized during the campaign

KARACHI: Omair Sana Foundation (OSF), the torch barier in regard with combating the dreadful disease of Thalasemia, is going to launch a week long awareness campaign in regard with the disease on May 1st, 2016.

This was announced by OSF Secretary Dr. Saqib Hussain Ansari at a press briefing on Wednesday at the OSF office in Karachi.  

Speaking on the occaison, he said that Thalassaemia major is a horrible disease and serious steps at both the public and private secter levels are needed to get rid of it. He demanded of the government to ensure implementation of the legislation in regard with Thalassaemia in letter and spirit.

 

He also demanded to make Thalassaemia  test a part of the Nikah Nama, addition of  Thalassaemia  status on the computerized national identity card and provision of the facility of Thalassaemia  test across the country free of cost.

Dr. Ansari expressed his concern over the rate on which the disease has been spreading and informed the mediamen that some 6000 children born each year with this deadly disease. As per conservative estimates currently there are more than 100,000 children in Pakistan who are suffering from Thalassaemia major.

Further more, he said, billions of rupees, being spended annually on medicines and medical procedure in this regard can be saved if the government shows its willingness to eradicate the disease.  

Talking about the services of OSF, he said that the foundation has been serving Thalassaemia affected families for last 12 years. In this regard, free blood test is offered for effected families , facilities of the Thalassaemia prevention center are also offered to other Thalassaemia centers of the country. So far, OSF has screened the blood of some 5000 thalassaemia affected families, conducted more than 2000 prenatal tests. In addition more than 350 Thalassaemia patients are registered in the OSF.

He said that all society members have to play their role for eradication of thalassaemia from the country.

During the campaign, a walk would be taken out on May 5, 2016 in Hamdard University, Candle light vigil would be held on the culminating day on May 8 at the Karachi Press Club. Meanwhile religious scholars, clerics, legislators, journalists, intellectual and prominent figures from other walks of life will be approached sensitized over the issue. 

 

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